Confirmed Speakers (2023)
ANNEMIEKE AARTSMA-RUS, Leiden University Medical Center (LUMC), the Netherlands
CARSTEN BERGMANN, Medizinische Genetik Mainz, Germany
CHRISTOPH BOCK, Research Center for Molecular Medicine (CeMM), Vienna, Austria
PETER BOOR, University Hospital of RWTH Aachen, Germany
HILDEGARD BÜNING, Hannover Medical School, Hanover, Germany
TOBIAS FREILINGER, Klinikum Passau & University of Tübingen, Germany
CHRISTIAN GEIS, Jena University Hospital, Jena, Germany
RUTGER GJALTEMA, Univerity of Amsterdam, the Netherlands
HOLM GRAESSNER, University Hospital Tübingen, Germany
BODO GRIMBACHER, Medical Center – University of Freiburg
LAURENT GROC, CNRS – University of Bordeaux, France
GÜNTER HARMS, Novartis Gene Therapies, Germany/Austria/Switzerland
TOBIAS HUBER, University Medical Center Hamburg-Eppendorf (UKE), Germany
DAVID JONES, German Cancer Research Center (DKFZ), Heidelberg, Germany
RALF JOX, Lausanne University Hospital (CHUV), Lausanne, Switzerland
PETRA KAUFMANN, Affinia Therapeutics, Waltham, USA
VERENA KEITEL-ANSELMINO, University Hospital Magdeburg & Düsseldorf, Germany
GEORGE KENSAH, University Medical Center Göttingen, Germany
JANBERND KIRSCHNER, Medical Center – University of Freiburg, Germany
JAN-HENNING KLUSMANN, University Hospital Frankfurt, Germany
STEFAN LANGE, Institute for Quality and Efficiency in Health Care (IQWiG), Cologne, Germany
SOEREN LIENKAMP, University of Zurich, Switzerland
MICHAL MINCZUK, University of Cambridge, UK
PAUL NORTHCOTT, St. Jude Children’s Research Hospital, Memphis, USA
STEPHAN OSSOWSKI, University Hospital Tübingen, Germany
MATTHEW PORTEUS, Stanford University School of Medicine, Stanford, USA
PETER ROBINSON, The Jackson Laboratory for Genomic Medicine, Farmington, USA
FRANZ SCHAEFER, Heidelberg University Hospital, Heidelberg, Germany
DMITRII SMIRNOV, Technical University of München (TUM), Munich, Germany
EVA STUMPE, German Association for Patients affected by Muscle Diseases (DGM), Germany
HENKJAN VERKADE, University Medical Center Groningen (UMCG), the Netherlands
NICO WULFFRAAT, University Medical Center (UMC) Utrecht, the Netherlands
Contact
Coordinating office of the German research networks on rare diseases
Friedrich-Baur-Institute, Department of Neurology
LMU Klinikum
Prof. Dr. Thomas Klopstock
Ziemssenstraße 1a
80336 Munich
Further Information:
Katja Franke-Rupp
Dr. Corinna Schultheis
Phone: 0049(0)89 4400 57063 / 57064
Email: info@research4rare.de
Website: www.research4rare.de