Confirmed Speakers (2023)

ANNEMIEKE AARTSMA-RUS, Leiden University Medical Center (LUMC), the Netherlands

CARSTEN BERGMANN, Medizinische Genetik Mainz, Germany

CHRISTOPH BOCK, Research Center for Molecular Medicine (CeMM), Vienna, Austria

PETER BOOR, University Hospital of RWTH Aachen, Germany

HILDEGARD BÜNING, Hannover Medical School, Hanover, Germany

TOBIAS FREILINGER, Klinikum Passau & University of Tübingen, Germany

CHRISTIAN GEIS, Jena University Hospital, Jena, Germany

RUTGER GJALTEMA, Univerity of Amsterdam, the Netherlands

HOLM GRAESSNER, University Hospital Tübingen, Germany

BODO GRIMBACHER, Medical Center – University of Freiburg

LAURENT GROC, CNRS – University of Bordeaux, France

GÜNTER HARMS, Novartis Gene Therapies, Germany/Austria/Switzerland 

TOBIAS HUBER, University Medical Center Hamburg-Eppendorf (UKE), Germany

DAVID JONES, German Cancer Research Center (DKFZ), Heidelberg, Germany

RALF JOX, Lausanne University Hospital (CHUV), Lausanne, Switzerland

PETRA KAUFMANN, Affinia Therapeutics, Waltham, USA

VERENA KEITEL-ANSELMINO, University Hospital Magdeburg & Düsseldorf, Germany

GEORGE KENSAH, University Medical Center Göttingen, Germany

JANBERND KIRSCHNER, Medical Center – University of Freiburg, Germany

JAN-HENNING KLUSMANN, University Hospital Frankfurt, Germany

STEFAN LANGE, Institute for Quality and Efficiency in Health Care (IQWiG), Cologne, Germany

SOEREN LIENKAMP, University of Zurich, Switzerland

PAUL NORTHCOTT, St. Jude Children’s Research Hospital, Memphis, USA

STEPHAN OSSOWSKI, University Hospital Tübingen, Germany

MATTHEW PORTEUS, Stanford University School of Medicine, Stanford, USA

PETER ROBINSON, The Jackson Laboratory for Genomic Medicine, Farmington, USA

FRANZ SCHAEFER, Heidelberg University Hospital, Heidelberg, Germany

DMITRII SMIRNOV, Technical University of München (TUM), Munich, Germany

EVA STUMPE, German Association for Patients affected by Muscle Diseases (DGM), Germany

HENKJAN VERKADE, University Medical Center Groningen (UMCG), the Netherlands

NICO WULFFRAAT, University Medical Center (UMC) Utrecht, the Netherlands

Contact

Coordinating office of the German research networks on rare diseases
Friedrich-Baur-Institute, Department of Neurology
LMU Klinikum
Prof. Dr. Thomas Klopstock
Ziemssenstraße 1a
80336 Munich

Further Information:
Katja Franke-Rupp
Dr. Corinna Schultheis

Phone: 0049(0)89 4400 57063 / 57064
Email: info@research4rare.de

Website: www.research4rare.de