Scientific Advisory Board
Prof. Dr. Christian Kratz, Hannover Medical School (MHH)
ADDRess – Disorders with abnormal DNA damage response
Prof. Dr. Frank Leypoldt, University Hospital Schleswig-Holstein, Kiel
CONNECT-GENERATE – Autoimmune encephalitis
Prof. Dr. Bodo Grimbacher, Medical Center – University of Freiburg
GAIN – Multi-organ autoimmune diseases
Prof. Dr. Verena Keitel-Anselmino, University Hospital Magdeburg
HiChol – Hereditary intrahepatic cholestasis
Prof. Dr. Thomas Klopstock, LMU University Hospital, LMU Munich
mitoNET – Mitochondrial diseases
Prof. Dr. Miriam Erlacher, Ulm University Hospital
MyPred – Syndromes predisposing to myeloid malignancies
Dr. Jens König, University Hospital Münster
NEOCYST – Hereditary cystic kidney diseases
Prof. Dr. Tobias B. Huber, University Medical Center Hamburg-Eppendorf
STOP-FSGS – Focal segmental glomerulosclerosis
Prof. Dr. Rebecca Schüle, University Hospital Heidelberg
TreatHSP.net – Hereditary spastic paraplegias
Prof. Dr. Holger Lerche, University Hospital Tübingen
Treat-ION – Neurological ion channel and transporter disorders
Prof. Dr. Christoph Klein, LMU University Hospital, LMU Munich
DZKJ – German Center for Child and Adolescent Health, partner site Munich
Contact
Coordinating office of the German Research Networks on Rare Diseases
Friedrich Baur Institute at the Department of Neurology
LMU University Hospital, LMU Munich
Prof. Dr. Thomas Klopstock
Ziemssenstraße 1a
80336 Munich
Further Information:
Katja Franke-Rupp
Dr. Corinna Schultheis
Phone: 0049(0)89 4400 57063 / 57064
E-mail: info@research4rare.de
Website: www.research4rare.de
